Hypermobility & University Life: How to Support Your Young Adult’s Independence

Helping Your Child Thrive with a Chronic Condition Away from Home - Hypermobility & University Life

Starting university is a huge milestone - exciting, transformative, and (let’s be honest) a little overwhelming. For young adults living with hypermobility syndrome or related chronic conditions, it’s not just about moving out and managing coursework; it’s about navigating pain, fatigue, flare-ups and anxiety in a brand new environment.

As a parent, it’s natural to feel worried. You might be wondering:

• How will they manage without me?

• What happens if they have a pain flare during exams?

• Will they ask for help when they need it?

  
  

The good news? With the right preparation and support, your child can absolutely succeed and even thrive at university. This guide will walk you through practical strategies to help them stay healthy, advocate for themselves, and feel confident living independently.

1. Understand the Unique Challenges of University with Hypermobility

While hypermobility can affect each student differently, common challenges include:

🚩 Chronic pain and joint instability – making long walks to class or sitting through lectures difficult

🚩 HMS related fatigue and brain fog – interfering with concentration and energy levels

🚩 Mental health struggles – including anxiety and depression, often linked to chronic pain

🚩 Accessibility issues – such as inadequate seating, unsupportive dorm furniture or buildings without lifts

2. Help Them Set Up Campus Accommodations in Advance

Most universities have a disability or student support service. Encourage your child to register before classes begin, ideally during the application or acceptance process.

✅ Common accommodations include:

• Extra time on exams

• Note-taking support or lecture recordings

• Flexible deadlines

• Housing accommodations (e.g., ground floor dorms, ergonomic furniture, etc)

• Accessible routes to buildings and lecture halls

  
  

💡 Tip: Documentation is often required. Support your child in getting a letter from their GP or specialist explaining their condition and its impact.

3. Foster Strong Self-Advocacy Skills

University is the first time many young adults must speak up for their needs without a parent present. Help them feel confident doing that.

🗣️ Teach them how to:

• Explain their condition clearly and calmly to staff

• Request reasonable adjustments without feeling guilty

• Recognise when they need to push for support (and when to rest)

  
  

💡 Tip: Practice conversations with them. Role-play how they might talk to a professor or flatmate about their condition.

4. Create a “Pain & Energy Management Plan” for Uni Life

Managing hypermobility at university is about more than academics - it’s about pacing, lifestyle choices and building resilience.

🗓️ Support them in developing routines that include:

• Daily movement: Low-impact exercises like stretching or resistance bands

• Breaks between classes to rest or stretch

• A mix of social and solo activities to avoid burnout

• Meal planning that supports joint and energy health

  
  

💡 Tip: Help them pack a “comfort kit” with joint braces, heat patches, a foam roller and any other tools they use at home.

5. Encourage Smart Time Management

Fatigue and pain can hit unexpectedly. Help them build flexibility into their schedule.

✅ Helpful habits include:

• Using digital planners or calendar apps to track classes, deadlines and rest time

• Breaking down large assignments into manageable chunks

• Starting early to avoid last-minute stress - which can trigger flares

  
  

💡 Tip: A gentle reminder: It’s okay if they need extra time progress is more important than perfection.

6. Support Their Social Life (even from afar)

One of the hardest parts for hypermobile students is feeling left out when they can’t keep up with late nights, clubbing or physically demanding activities.

🤝 Encourage them to:

• Choose social events that don’t worsen symptoms (e.g. movie nights, board game evenings or study groups)

• Be honest with new friends about their needs

• Join online communities or societies where accessibility is considered

  
  

💡 Tip: Reassure them that building a social life takes time and true friends will understand their boundaries.

7. Keep Mental Health on the Radar

The combination of chronic pain, academic stress, and new environments can increase the risk of anxiety and depression. Check in regularly and encourage them to seek help if needed.

🧠 Supportive resources include:

• University counselling services

• Online therapy apps or platforms

• Peer support groups for students with chronic illnesses

  
  

💡 Tip: Don’t downplay their emotional struggles. Let them know it’s okay to ask for help not just physically but emotionally too.

Conclusion: Independence Doesn’t Mean Going It Alone

Helping your hypermobile teen prepare for university isn’t about fixing everything for them it’s about giving them the tools, confidence, and support to handle life on their terms.

By being proactive about accommodations, encouraging self-advocacy and creating a self-care plan, you're setting them up for success, not just academically but in every area of life.

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I hope you have enjoyed this article and found it helpful.

For more personalised one-to-one support with any aspect of Hypermobility Syndrome, Hypermobility Spectrum Disorder or Hypermobility Ehlers-Danlos Syndrome please do get in touch with me.

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Book a 30 minute, complimentary call with me to discuss your symptoms and how they could benefit from one-to-one support here at my clinic in Cardiff or via my UK wide remote hypermobility service.